From time to time, we report on issues that we’d like our readers to get behind. In the past, we’ve written about a wide range of charitable causes in the hope of doing some good, thankfully, we’ve been able to help promote a number of issues and have seen some fantastic engagement!
This evening, we bring you a cause that we would like you to engage with, simply sharing the story can go a long way in helping raise awareness and support!
It is difficult to not be touched by the story of Summer. Please read this article and if you are lucky enough to be in a position to help out, please do!
Noonan Syndrome is a genetic disorder that affects between 1 in 1000 and 1 in 2,500 children. With symptoms ranging from very mild to severe, the treatments for the condition vary from child to child but most suffers are born with life-threatening congenital heart defects.
Summer Rose Thompson’s diagnosis took place after numerous medical tests as a tiny, newborn baby. She spent much of her early life in hospital with her mum, Becky, at her bedside. At just a year old, she had open-heart surgery to repair two holes. The operation was a success and hospital appointments became less frequent.
Summer’s family began to look forward to a healthier and happier future for their beloved little girl, but their world fell apart at the beginning of this year. Summer Rose had been poorly for a worrying length of time with sickness and high temperatures, so her parents made the decision to take her to their local hospital where the medical team carried out tests.
Sadly, Summer’s blood tests revealed something far more sinister than the family had anticipated – Acute Myeloid Leukaemia. At the time of her diagnosis, Summer’s mum was heavily pregnant and has since given birth to another baby girl. The baby was born in perfect health and stem cells taken from the placenta and umbilical cord has been donated to Summer to help in her fight against Cancer. Unbeknownst to her parents throughout the pregnancy, this little baby could save the life of her older sister. With this in mind, the family have named her ‘Hope’ and she remains with Becky and Summer on the hospital ward.
In addition to her ongoing plight to raise awareness for Noonan’s Syndrome, Kirsty Monaghan (Summer’s Aunt) will be shaving her own hair in order to raise money for Cancer Research UK.
“My beautiful niece has already been through so much with her Noonan Syndrome. I wanted to do something to support her during her treatment. She isn’t even 2 years old yet and this treatment is going to make her feel so poorly. The least I can do is shave my hair to make losing hers slightly easier for her.”
To make a donation to or to read more about Summer’s story, please visit Kirsty’s JustGiving Page.